International Birth Defects Information System (a great site)
Beckwith-Wiedemann
Cleft lip and palate
Pierre Robin sequence
Cystic Fibrosis Foundation
Diaphragmatic Hernia (CERUBS)- The Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support.
Down syndrome for parents
Down syndrome National Association of Down syndrome
Down syndrome National Down Syndrome Society
Genetic Alliance Online Directory of Genetic Resources Searchable sites and resources for specific genetic conditions and syndromes
Genetic Information And Patient Services (GAPS) Searchable sites and resources for specific genetic conditions and syndromes
Fragile X National Foundation
Little People of America
Spina Bifida Association
Tay Sacks (National Tay Sacks and Allied Diseases Association)